MS Journey

Today was Monday, and for the first time in a long while, I woke up by myself at 6 AM. As I let the dogs outside, the day started with a wave of unease that I understood as soon as I opened the door. The humidity hit me like a wall, forcing me to shut the door almost immediately after the dogs got out. It had rained again during the night; the concrete was still wet, and a few drops fell from the deck onto my forehead. A Morning of Mixed News At 10 AM, I had an appointment with the vision doctor. The news was a blend of good and bad. I got a new prescription, but the doctor confirmed that my optical nerves are damaged, a condition known as optical neuritis. He saw dead nerves that couldn't be revived but was pleased to note that the thin nerves hadn't become thinner. In fact, they were a bit thicker than last time, which was a small victory. Dealing with Deliveries and Fatigue When I returned home, I found a package for my kids had been delivered, but it was missing one of the ...

Today is another blistering hot day, the kind that makes even the simplest tasks feel like monumental challenges. I woke up feeling the weight of the heat pressing down on me, knowing it would be another day where MS and the weather conspired to keep me bed-bound. In the morning, I mustered the energy to get up and let the dogs in. As I tried to steady myself, the familiar dizziness hit me harder than usual. Before I knew it, I had lost my balance and landed on my rear end. The frustration of these moments is hard to describe. Balance and walking are already difficult with MS, but the added heat and fatigue make everything worse. Getting back to my feet took a concerted effort, and I was exhausted before the day had even begun. It became clear that today would be another one spent mostly in bed, trying to conserve my energy and cope with the relentless fatigue. The dogs, sensing my struggle, stayed close by, offering their quiet companionship. Their presence is a comforting reminder th...