MS Journey

Today was one of those days that started off slow but quickly spun into chaos. I slept in a bit longer than usual, and the cleaning ladies were already here, busily working on a deep clean of the house. The day began with the usual hustle—letting the dogs out, waking everyone up, and preparing for the day ahead.  The kids had swimming class, so we bundled everyone up and headed out. Afterward, we treated ourselves to some ice cream at Costco, which is always a hit with the little ones. We came back home, unloaded our shopping haul, and I found myself in a conversation with one of the cleaning ladies about the natural cleaning products she was using—something I’ve been more conscious about lately. In the middle of our chat, my little guy suddenly appeared, chin bloodied from a fall. My heart jumped into action mode. I cleaned his wound, inspected it carefully, and had him hold a clean towel while my oldest son and niece watched over him. I rushed to grab some gauze and a big band-ai...

Yesterday, despite an unexpected injury, turned out to be a day full of small joys and accomplishments. The day was dry but hot, and though my activity was limited, I made the most of it by staying in the shade. Even then, I found myself sweating, with my hair sticking to my back, a constant reminder of the summer heat. In the morning, after taking the kids to their swimming class and treating them to ice cream, I managed to plant three new plants. It felt satisfying to see them in the ground, adding a touch of green to our yard. Later, I covered the trampoline with a tarp, creating a perfect shaded spot for the kids to play all day long. Their laughter was the best background music as I moved landscaping lights and tidied up. As the evening approached, I was busy cleaning up and organizing tools, ladders, steps, and wires. I used the right side of the house to move items from the garage to the basement. The day was winding down, but my tasks were not yet complete. I gathered the kids...

Today was a wonderful day, filled with delicious food, productive moments, and quality family time. We started the day with a hearty brunch of egg sausage, noodles, and tomato salad. The combination of savory sausage, fluffy eggs, and fresh tomatoes with perfectly cooked noodles made for a delightful and satisfying meal. It was a great way to kick off our day together. After brunch, I took some time to fix the vacuum cleaner. It’s amazing how a small task can feel so rewarding once it’s done. The vacuum was back in working order, ready to tackle any messes that might come our way. With chores out of the way, we decided to spend the rest of the day relaxing by the pool. My 10-year-old daughter, and my 4-year-old son were thrilled at the prospect of a pool day. The weather was perfect, and the water was inviting. We splashed around, played games, and enjoyed the sun. Watching my kids laugh and play in the water was the highlight of my day. Their joy is contagious, and it reminded me of t...

Yesterday was tough. After the July 4th parade and mowing the lawn, my fatigue, pain, blackouts, and stress took a toll on my body. I had to forego the friends' get-together and watching fireworks, which I had really been looking forward to. Sitting down to chat, share food, and have a good time with the kids was something I was excited about. However, I think I'll need to figure out a different way to celebrate the 4th of July next year, especially since the kids will undoubtedly want to continue participating in the parade. This morning, I woke up early to the most amazing weather—cloudy, cool, not humid, and with a gentle breeze. Days like this are rare, and I wish we had more of them. I don’t remember the last time I felt this productive.  I finished mowing the backyard, fertilized the lawn, cleaned the garden weeds, played with my little one, picked wild strawberries that the kids missed, harvested five zucchinis and some tomatoes, added drip irrigation, moved potting soil...

Today was appointment day, and I received some encouraging news. The doctor confirmed that what I have is a big and deep cyst. While that sounds daunting, I’m starting on antibiotics to help reduce its size so the doctor can take care of it in two weeks. It feels good to have a plan in place. After yesterday’s cool and refreshing weather, I managed to accomplish a couple of things today. We've had lots of rain since yesterday evening, which meant I had to empty Coco's outdoor water bowls twice – once in the morning and again at 2 PM. It's a bit of extra work, but the rain has a calming effect, and I enjoy the sound of it. One of the highlights of my day was making chicken dumplings for the kids. They absolutely loved them! There's something so rewarding about seeing their happy faces enjoying a meal I prepared. I even got to savor their leftovers, which were just as delicious. As the little guy took his nap and Coco enjoyed the outdoors, I found a moment of peace. The w...

Today is another blistering hot day, the kind that makes even the simplest tasks feel like monumental challenges. I woke up feeling the weight of the heat pressing down on me, knowing it would be another day where MS and the weather conspired to keep me bed-bound. In the morning, I mustered the energy to get up and let the dogs in. As I tried to steady myself, the familiar dizziness hit me harder than usual. Before I knew it, I had lost my balance and landed on my rear end. The frustration of these moments is hard to describe. Balance and walking are already difficult with MS, but the added heat and fatigue make everything worse. Getting back to my feet took a concerted effort, and I was exhausted before the day had even begun. It became clear that today would be another one spent mostly in bed, trying to conserve my energy and cope with the relentless fatigue. The dogs, sensing my struggle, stayed close by, offering their quiet companionship. Their presence is a comforting reminder th...